Saturday, January 26, 2008

Two in a row


If you're going to strain your back while lifting up your baby, I recommend doing it on shot day, since you'll be taking Advil all night anyway. Just a thought.


So I admit to being somewhat miffed. It's almost like there's a network of tiny sensors just beneath my skin which is designed to grab my attention sharply whenever something impinges on them. Whatever they really are, the damn things make it so that my shots hurt some days, today being one of them. 

I've been mildly clumsy the last few days, nothing major but just dropping things a little more than usual. I think I'm probably just a little out of whack (that's a technical term), and being sleep deprived is unlikely to be helping. But as always with such things, I get a little mental picture of a white spot on an MRI getting just a tiny bit bigger. 

My current scheme is to learn to feel my spine from the inside of my body, to know where it is and how it is oriented in the same way that I know where my arms and fingers are. Hare-brained or brilliant? You decide! My goals are improved posture, less back pain, and the plain fun of it. The thing is, I wonder whether in the short term I'm moving differently enough from this experiment to have led to this morning's strain when I picked up the baby. And this is probably totally why I've been clumsy too. My acupuncturist, upon hearing the plan, suggested a technique from medical qigong that entails feeling and moving each vertebra individually, up and down your back. That's going to take some doing, I imagine, but to start, I'm just thinking of the whole thing as a unit, like a third arm that's not very good at picking things up or ringing doorbells.

I had an appointment scheduled with the neurologist last week, but through sheer bone-headedness I forgot about it entirely until several hours after it should have been over. I haven't had time yet to get it rescheduled, so no interesting news on that front.

Not much to say tonight, I find, so I shall simply suggest: Good Night!

A Word of Advice

If you're going to strain your back while lifting up your baby, I recommend doing it on shot day, since you'll be taking Advil all night anyway. 

Saturday, January 19, 2008

Welcome to 2008


Audrie wondered aloud to me today if we would ever catch up—the days are so full of caring for the baby that our lists grow stale and ever longer. I imagine that, if Leif moves out at age 18 or so, it should take no more than another 18 years to catch up after that, so we're sure to caught up by the time I'm 71. Glad that's settled.


This blog is about my adventures with MS, not about my many other thrilling escapades, so I shan't excite you with much else tonight. But there is still plenty to tell. Actually, I'm pleased to report that there's little enough about MS proper; it's more about coping with the interferon therapy (Avonex). I'll see the neurologist sometime in the next couple of months and maybe have more news then. 

We traveled to Utah in December, where my in-laws celebrate Christmas, and to Idaho, where Leif's great-grandparents live. The most humorous thing about Idaho, which is where one of my shot days fell, had to do with the cold. In Tucson, if it's not Too Hot, it's generally Pretty Nice. You don't worry about leaving stuff in your car for the mild months of winter. In Idaho, there is a third season of Too Cold. When I found that the Tempurpedic brand sleep masks and slippers, which I splurged on back when "disposable income" was not a clever way of spelling "diaper", had frozen while sitting out in suitcase in the car, I worried that my Avonex had also gotten too cold and been ruined. It likes to be kept between 36 and 46 degrees Fahrenheit, according to the informational insert, and Too Cold is markedly below 36. But as it turned out, the Avonex had been in a different car and there was no worry after all. It is a little surprising to put on your slippers and find them, not warm and soft, but chilly and as solid as Tamilee Webb's remarkable abs.

The instructions for Avonex have changed with the new luer-lock attachment, and I did not have to keep the package carefully refrigerated on the plane etc. That was nice. I got into trouble on the way back, but it was because I had forgotten to take my cell phone out of my pocket at the security checkpoint. And my wallet. And my Palm Pilot. And my Space Pen. Anyway…

Audrie also pointed out that I can take Advil every 4 hours if I want, rather than waiting 6, and so shot nights have been much less achy lately. I still find that I'm weak the next day—not feeble, but not able to hold the baby for long or to wrestle giant squids with as much vigor as usual. (Okay, it's awesome what you can get if you type random phrases into Google. Just make sure you have SafeSearch turned on to avoid the dross.)

I could ramble for hours, but then I'd be grumpy tomorrow from lack of sleep. So I merely wish you the best of all possible days, and promise that I will check in again as soon as I am able.